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Government of Canada signs bilateral agreement with Nova Scotia to improve access to drugs for rare diseases
20 Mar 2025 22:04 GMT
… the treatment of treatment of von Hippel-Lindau (VHL) disease;
Yescarta for the treatment … , including access to affordable prescription medications and better health outcomes for everyone.
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Merck’s Welireg granted EC approval for von Hippel-Lindau disease and kidney cancer
19 Feb 2025 12:29 GMT
… monotherapy for certain patients with von Hippel-Lindau (VHL) disease and renal cell carcinoma … in 2020 alone. The disease disproportionately affects men and approximately … recommendation from the European Medicines Agency’s human medicines committee and was …
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Pathogenicity of germline VHL variants is associated with renal cell carcinoma size in von Hippel-Lindau disease.
14 Feb 2025 15:07 GMT
… -phenotype correlations in patients with Von Hippel-Lindau (VHL) disease.
We retrospectively studied 53 … , Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo … , Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo …
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Government of Canada signs bilateral agreement with Nunavut for Drugs for Rare Diseases
14 Mar 2025 01:25 GMT
… quality health services and medications, including effective drugs for rare diseases, … treatment of treatment of von Hippel-Lindau (VHL) disease; and,
Yescarta for … affordable prescription medications, and to achieving better health outcomes for …
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Drugs for Rare Diseases - Nunavut Agreement
14 Mar 2025 01:25 GMT
… diagnosis, and screening for rare diseases.
March 2025
Today, the Governments … to all patients with rare diseases. Recognizing the unique challenges associated … cycles.
Health Canada has authorized Welireg to treat von Hippel-Lindau (VHL) disease in adults …
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Von Hippel-Lindau disease drug Welireg listed on PBS slashing cost by $11,000 a month for patients
28 Jan 2025 03:35 GMT
… best things are the modern medical strokes of genius, giving … or von Hippel-Lindau disease.
These are the sufferers of a genetic disorder, which … full price for the medication for seven weeks, because … be able to access the medication.
“Words cannot express how …
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One in 10 Americans is living with a rare disease
28 Feb 2025 14:50 GMT
… the Virginia Department of Health’s Rare Disease Council. The council … Tech:
John Chappell studies Von Hippel-Lindau disease, an inherited disorder characterized by the abnormal … Virginia-Maryland College of Veterinary Medicine’s Department of Biomedical …
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China NMPA approves Merck's Welireg to treat adult patients with certain types of von Hippel─Lindau disease─associated tumours
23 Nov 2024 10:12 GMT
… Canada, announced that the National Medical Products Administration (NMPA) in China … and in combination with other medicines.
LITESPARK-004 is an open … and CNS hemangioblastomas.
Von Hippel-Lindau disease is a rare genetic disease that impacts an …
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EC conditionally approves MSD’s Welireg for VHL disease and RCC
18 Feb 2025 15:25 GMT
… treatment of adults with von Hippel-Lindau (VHL) disease and advanced clear … for adults with VHL disease who need therapy for … those with specific VHL disease-associated tumours.
Access the … therapy for treating VHL disease-associated tumours. The approval …
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Merck Receives Positive EU CHMP Opinion for WELIREG® for Von Hippel-Lindau Disease-Associated Tumors and for Advanced Renal Cell Carcinoma
13 Dec 2024 20:52 GMT
… the European Medicines Agency’s Committee for Medicinal Products for … adult patients with von Hippel-Lindau (VHL) disease who require therapy … CHMP recommendation in VHL disease-associated tumors is based … adult patients with VHL disease who require therapy …